Past Media & Events

February 7, 2025 - Southeast Huntington’s Disease Symposium, Nashville, TN

Christy moderated a panel on patient engagement that included Erika Boulavsky (HD Reach), Jamie Holloway (Help4HD), Jenna Heilman (HDYO), and MaryAnn Emerick (HDSA’s National Youth Alliance).

January 7, 2025, and February 4, 2025 - HD Reach Book Club

The HD Reach Book Club read and discussed Livable Lives.

December 5, 2024 - Huntington’s Disease Youth Organization

Christy spoke with Jenna Heilman, executive directory of HDYO, to discuss the launch of Livable Lives.

November 30, 2024 - Meet the Author, Shoreline, WA

In-person event to share Livable Lives with Seattle-area readers.

November 24, 2024 - Livable Lives Press Release (HDYO)

Press release announcing the launch of Livable Lives.

February 22, 2024 - Huntington’s Disease Youth Organization

Christy spoke with Jenna Heilman, executive director of HDYO, to talk about the impact of sharing our HD stories.

December 21, 2023 - Help4HD International

Christy discussed Livable Lives with Lauren Holder, patient advocate, producer and host of Help4HD Live!, and host of the Dying to Live podcast. 

November 2023 - European Huntington’s Disease Network (EHDN) News Issue 50

Livable Lives was mentioned in EHDN’s newsletter in an article titled: Huntington’s Disease Heroes: Inspiring Stories of Resilience from the HD Community.

October 13-15, 2023 - Help4HD International, San Diego, CA

Christy hosted a table at Help4HD International’s annual symposium to share Livable Lives with the HD community.

September 7, 2023 - HelpCureHD Educational Forum, Houston, TX

Christy hosted a table at HelpCureHD’s inaugural educational forum to introduce Livable Lives to the HD community.