Media & Events
I am available for speaking opportunities and interviews. Please reach out!
Upcoming Events
April 4 and 5, 2025 - HD Reach Education Day, Cary, NC
Christy will participate in sessions on storytelling and testing negative.
Past Media & Events
March 14-16, 2025 - HDYO Congress, Prague, Czech Republic
Christy met with HD community members at her table in the exhibit hall.
March 6, 2025 - Help4HD Live! Podcast
Christy discussed advocacy and HD-PACE with Lauren Holder, patient advocate, producer and host of Help4HD Live!, and host of the Dying to Live podcast.
February 7, 2025 - Southeast Huntington’s Disease Symposium, Nashville, TN
Christy moderated a panel on patient engagement that included Erika Boulavsky (HD Reach), Jamie Holloway (Help4HD), Jenna Heilman (HDYO), and MaryAnn Emerick (HDSA’s National Youth Alliance).
January 7, 2025, and February 4, 2025 - HD Reach Book Club
The HD Reach Book Club read and discussed Livable Lives.
December 5, 2024 - Huntington’s Disease Youth Organization
Christy spoke with Jenna Heilman, executive directory of HDYO, to discuss the launch of Livable Lives.
November 30, 2024 - Meet the Author, Shoreline, WA
In-person event to share Livable Lives with Seattle-area readers.
November 24, 2024 - Livable Lives Press Release (HDYO)
Press release announcing the launch of Livable Lives.
February 22, 2024 - Huntington’s Disease Youth Organization
Christy spoke with Jenna Heilman, executive director of HDYO, to talk about the impact of sharing our HD stories.
December 21, 2023 - Help4HD Live! Podcast
Christy discussed Livable Lives with Lauren Holder, patient advocate, producer and host of Help4HD Live!, and host of the Dying to Live podcast.
November 2023 - European Huntington’s Disease Network (EHDN) News Issue 50
Livable Lives was mentioned in EHDN’s newsletter in an article titled: Huntington’s Disease Heroes: Inspiring Stories of Resilience from the HD Community.
October 13-15, 2023 - Help4HD International, San Diego, CA
Christy hosted a table at Help4HD International’s annual symposium to share Livable Lives with the HD community.
September 7, 2023 - HelpCureHD Educational Forum, Houston, TX
Christy hosted a table at HelpCureHD’s inaugural educational forum to introduce Livable Lives to the HD community.